ACCCA Research Network

Adult Congenital Cardiac Care Associate Research Network

Welcome to ACCCA Research Network

The ACCCA Research Network is a forum for non-physician adult congenital heart disease (ACHD) providers and researchers to collaborate on peer-reviewed multi-center clinical research that is patient and family centered.

The inception of this charter research group stems from the recognized multi-disciplinary research needs identified by the ACHD Working Group of the American College of Cardiology (ACC).  Sanctioned by the ACC, the ACCCA works collaboratively with the ACHD Working Group and other provider and patient organizations to move forward with important multi-center research in ACHD.  Potential research areas include clinical care outcomes, lifestyle behaviors and psychosocial issues.

For questions or to find out more information on the research group email

ACCCA Research

Leadership Team

Leadership Team - ACCCA Research
§Chair:   Sue Fernandes, LP.D, PA-C (Stanford)
§Co-Chair:    Pam Miner, RN, MN, NP (UCLA)
§Secretary:   Adrienne Kovacs, PhD, CPsych (Toronto)
§ACC Liaison: Disty Pearson, PA-C, AACC (Boston)
§ACCCA Website: Michelle J. Nickolaus, MSN, CRNP, AACC (Penn State Hershey)

To email the leadership team for inquiries:  email to

 *ACC American College of Cardiology

Network Members

ACCCA Research Members

Yvonne Balon, RN, BSN, MN (Calgary)

Petar Breitinger, PA-C, MPAS (Florida)

Mary Canobbio, RN, MN, FAAN (Los Angeles)

Stephen Crumb, DNP, AACC (Ohio State) Immediate Past Co-Chair

Desiree Fleck, CRNP (Philadelphia)

Jeanine Harrison, MN, ACNP (Toronto)

Joy Lyon, RN, PhD (Southhampton, UK)

Philip Moons, PhD, RN, FAHA (Leuven, Belguim)

Joann Nieves, MSN, CPN, ARNP-BC (Miami)

Mary E. Schlater (Libs), ARNP, MSN (Seattle)